Our Mission:
Thrive.
We help adults with arthrogryposis connect to a community of hope where they can be a part of innovative research that informs how we live and age.
Our Mission
Be encouraged. There is hope. We are committed to offering adults with arthrogryposis the opportunity to be a part of the most innovative research on aging with the condition. Together, we can offer our collective experiences to ensure adults have resources and information about what to expect as they grow older.
Our Research
Our collective desire, as adults with AMC, is to offer the most innovative global research on what to expect as we age. Currently, there are more questions than we have answers, and the quantity of AMC-specific research available to us today is shockingly low. We aim to change that.
Get Involved
Are you excited to know there is research occurring to help improve the lives of people like you or your loved one with arthrogryposis? Get involved and stay connected to what’s happening with arthrogryposis research and the arthrogryposis community!
PARTICIPATE IN OUR RESEARCH
You are invited to participate in the Adult AMC registry if you have been diagnosed with arthrogryposis and are over 19 years old. In this registry, people with arthrogryposis will enter data online every year, so that we (patients, researchers, clinicians) can begin to learn what the key challenges are for adults living with arthrogryposis.
Joyce Eberl
"Joyce had assumed for years her left elbow was fused at a 90-degree angle, but due to an unfortunate event, she learned it was actually a muscle transfer that was performed..."
